Building Sustainable Health Care

Providing free medicines is only one aspect of improving access to treatment. Genzyme also participates in many activities to support sustainable health care systems and improve standards of care worldwide.

Even with free drug programs or other forms of funding, patients' access to treatment can still be impeded by other issues: logistical and bureaucratic difficulties, inadequate health care facilities, or simply lack of knowledge. So in addition to donating our products, Genzyme works in many ways to build and maintain the many avenues necessary for medical care.

Global Reach, Local Involvement

Genzyme's worldwide operations serve more than 100 countries, with a global infrastructure that includes research and development, manufacturing, regulatory affairs, medical affairs, and more. This network of expertise, plus our on-the-ground relationships with local stakeholders, enables us to bring products to patients in every corner of the globe.

Genzyme works closely with governments to facilitate approval of our treatments. In countries with established health care systems, we work with public and private insurers to secure coverage and reimbursement. In developing countries and emerging markets, we lend our experience to help physicians and local authorities build sustainable health care networks that can deliver and pay for critical treatment. Around the world, Genzyme collaborates with health care providers, humanitarian organizations, and other local partners to overcome barriers to treatment.

Supporting Patients in Need

Queen Zina, as she is known, is a bubbly and bright young girl. The youngest of three children, she was diagnosed with MPS I when she was a year old. Queen Zina’s family has been able to access treatment for her through Genzyme’s Humanitarian Program since 2013. She loves to play with her family and ride her bike and has a knack for memorizing songs easily.

Learn more about our humanitarian programs

Education and Outreach

Genzyme's business was founded on treating diseases so rare that they are often unfamiliar even to many health care professionals. We are acutely aware of how important education and outreach are to identifying and effectively treating patients. Through our Humanitarian Programs and other initiatives, we work to raise awareness about the diseases we treat, educate both patients and the medical community, and advance research and quality of care.

  • As one of the world's leading authorities on the group of rare genetic diseases called lysosomal storage disorders (LSDs), Genzyme develops educational materials for both patients and professionals to increase understanding about these diseases.
  • Our programs provide healthcare providers expanded opportunities in clinical education, treatment experience and patient monitoring. Many times, Genzyme’s humanitarian programs serve as a physician’s first experience in treating an LSD.
  • By establishing LSD registries – large multinational databases to which physicians contribute clinical data on patients – we help pool knowledge on rare diseases that would be otherwise difficult to study.
  • We sponsor independent investigator research and provide grants for continuing medical education and research fellowships in our areas of focus.
  • We partner with local patient organizations around the world to support and advocate for the needs of their patient communities.
Last Updated: 6/22/2015
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Humanitarian Partners

Our free drug programs and other humanitarian efforts are made possible with the help of these and other partners:

Support Services
Reaching Out to Patients

Learn about the programs and services Genzyme provides to help patients obtain access to our treatments.

Newborn Screening for Rare Diseases

Early diagnosis saves and improves lives of individuals with progressive diseases. Genzyme manufactures and donates reagents for Pompe disease & MPS I newborn screening to the CDC, which in turn distributes them worldwide without charge.

Facing Fabry Together

Through powerful testimonials from patients, caregivers, and health care professionals, this film shares the stories of four families from around the world that are living with Fabry disease.