This site is intended to provide the Pompe patient community and physicians with current information about the ADVANCE study, including a list of the ADVANCE study approved sites by state. If you have questions about the ADVANCE study, please contact Genzyme Medical Information at 800-745-4447, option 2 or 617-768-9000, option 2.

Download the current program updates below:

ADVANCE Fact Sheet (added 3/19/2012)
ADVANCE Program Update (added 3/20/2012)

ADVANCE study approved sites

AL AK AZ AR CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY

Alabama

• Hospital Name: University of Alabama at Birmingham, UAB – Dept of Pediatrics, Pulmonary Division
• Address: 620 ACC Building, 1600 7th Ave. South, Birmingham, AL 35233
• MD Name: Chris Makris, MD

Arizona

• Hospital Name: Phoenix Children’s Hospital, Genetics Division
• Address: 1919 East Thomas Road, Main Tower, 2nd Floor, Orthopedics, Phoenix, AZ 85016
• MD Name: Kirk Aleck, MD

Arkansas

• Hospital Name: Arkansas Children's Hospital, Division of Clinical Genetics
• Address: One Children's Way, Slot 512-22, Little Rock, Arkansas 72202-3591
• MD Name: Stephen Kahler, MD

California

• Hospital Name: Children's Hospital of Orange County, Division of Metabolic Disorders
• Address: 455 S Main Street, Orange, CA 92868
• MD Name: Raymond Wang, MD

• Hospital Name: Kaiser Permanente, Genetics Department
• Address: 5755 Cottle Road, Building #1 San Jose, CA 95123
• MD Name: Joyce Kobori, MD

• Hospital Name: Stanford University
• Address: 300 Pasteur Drive, Rm A342, Stanford, CA 94305-5235
• MD Name: John Day, MD

• Hospital Name: University of California San Diego, Biochemical Genetics Laboratory
• Address: 212 Dickinson Street, CTF-B Room 213, San Diego, CA  92103
• MD Name: Dr. Bruce Barshop

Colorado

• Hospital Name: The Children's Hospital, Inherited Metabolic Diseases Clinic
• Address: 13123 East 16th Ave., Box 153, Aurora, CO 80045
• MD Name: Janet Thomas

Florida

• Hospital Name: University of Florida, Dept of Pediatrics/Powell Gene Therapy Center
• Address: PO Box 100296, 1200 Newell Drive, ARBRG-183, Gainesville, FL 32611
• MD Name: Barry Byrne, MD

• Hospital Name: Miami Children’s Hospital Brain Institute, Divison of Genetics and Metabolism
• Address: 3100 SW 62nd Avenue, Suite 3209, Miami, FL 33155
• MD Name: Dr. Parul Jayakar

Georgia

• Hospital Name: Emory University Genetics
• Address: 2165 North Decatur Rd., Decatur, GA 30033
• MD Name: M. Ali Pervaiz, MD

Illinois

• Hospital Name: Children’s Memorial Hospital, Division of Genetics
• Address: 2300 Children’s Plaza #59, Chicago, IL 60614
• MD Name: Barbara Burton, MD

Indiana

• Hospital Name: Riley Hospital for Children, Department of Medical and Molecular Genetics, Indiana University School of Medicine
• Address: 975 W. Walnut St., Suite IB-130, Indianapolis, IN 46202
• MD Name: Dr. Christopher Griffith

Kansas

• Hospital Name: University of Kansas Medical Center (KUMC)
• Address: Mail Stop 3063, 3901 Rainbow Blvd., Kansas City, KS 66160
• MD Name: Majed Dasouki, MD

Louisiana

• Hospital Name: LSUHSC – Shreveport, Dept. of Pediatrics
• Address: 1501 Kings Hwy., Shreveport, LA 71103
• MD Name: Ernest Kiel, MD

• Hospital Name: Our Lady of The Lake Regional Medical Center, Genetic Services
• Address: 8415 Goodwood Blvd., Suite 202, Baton Rouge, LA 70806
• MD Name: Duane Superneau, MD

Massachusetts

• Hospital Name: Children's Hospital Boston, Department of Cardiology
• Address: 300 Longwood Ave, Bader 2, Boston, MA
• MD Name: Leslie Smoot, MD

Michigan

• Hospital Name: Helen DeVos Children's Hospital
• Address: 100 Michigan Street, MC 085, Grand Rapids, MI 49503
• MD Name: David Dickens, MD

• Hospital Name: Children's Hospital of Michigan
• Address: 3031 W. Grand Blvd., Detroit, MI 48202
• MD Name: David Stockton, MD

Minnesota

• Hospital Name: Children's Hospitals and Clinics of Minnesota
• Address: CSC – Room G055, 2525 Chicago Ave. S., Minneapolis, MN 55404
• MD Name: Nancy Mendelsohn, MD

Missouri

• Hospital Name: Children’s Mercy Hospital, Division of Genetics
• Address: 2401 Gillham Road, Kansas City, MO 64108
• MD Name: Dr. Laurie D. Smith

• Hospital Name: University of Missouri Health Care, Department of Child Health, Division of Medical Genetics
• Address: NW 507 Medical Science Building, DCO58.00 , One Hospital Drive, Columbia, MO 65212
• MD Name: Ayman El-Hattab, MD

• Hospital Name: Washington University School of Medicine, Division of Neurology
• Address: 660 S. Euclid Ave., St. Louis, MO 63110
• MD Name: Anne Connolly, MD

Nebraska

• Hospital Name: University of Nebraska Medical Center, Munroe-Meyer Institute, Department of Pediatrics
• Address: 985456 Nebraska Medical Center - MMI 3062, Omaha, NE 68198-5456
• MD Name: William Rizzo, MD

New Jersey

• Hospital Name: Saint Peter's University Hospital
• Address: 254 Easton Ave., New Brunswick, NJ 08901
• MD Name: Debra-Lynn Day-Salvatore, MD, PhD

New York

• Hospital Name: Adirondack Pediatrics, PC
• Address: 84 Broad St., Glens Falls, NY 12801
• MD Name: Mary Nevins, MD

• Hospital Name: New York University Medical Center
• Address: 403 East 34th Street, 2nd Flr., New York, NY 10016
• MD Name: Gregory Pastores, MD

• Hospital Name: Regional Medical Genetics Center
• Address: 503 Grasslands Rd., Suite 200, Valhalla, NY 10595
• MD Name: Dr. David Kronn

• Hospital Name: SUNY Upstate Medical University, Section of Genetics
• Address: 750 East Adams St., Syracuse, NY 13210
• MD Name: Joan Pellegrino, MD

• Hospital Name: University of Rochester Medical Center, Dept. of Pediatrics
• Address: 601 Elmwood Ave, Box 777, Rochester, NY 14642
• MD Name: Dr. Chin-To Fong

North Carolina

• Hospital Name: Duke University Medical Center, Division of Medical Genetics
• Address: Durham, NC 27710
• MD Name: Priya Kishnani, MD

• Hospital Name: Fullerton Genetic Center
• Address: 11 Vanderbilt Park Drive, Asheville, NC 28803
• MD Name: Ellen Boyd, MD

Ohio

• Hospital Name: Cincinnati Children's Hospital Medical Center, Division of Human Genetics
• Address: 3333 Burnet Avenue, ML 4006, Cincinnati, OH 45229-3039
• MD Name: Nancy Leslie, MD

• Hospital Name: University Hospital of Cleveland
• Address: 11100 Euclid Ave., Suite 1500, Center for Human Genetics, Lakeside 1500, Cleveland, OH 44106
• MD Name: Shawn McCandless

Pennsylvania

• Hospital Name: Children's Hospital of Pittsburgh of UPMC, One Children's Hospital Drive
• Address: 4401 Penn Avenue, Faculty Pavilion, Floor 1, Pittsburgh, PA 15224
• MD Name: David Finegold, MD

• Hospital Name: Colket Translational Research Center, The Children's Hospital of Philadelphia
• Address: 3501 Civic Center Blvd., Philadelphia, PA 19104
• MD Name: Dr. Paige Kaplan

• Hospital Name: St. Christopher's Hospital for Children
• Address: Erie Ave at Front Street, Philadelphia, PA 19134
• MD Name: Ignacio Valencia, MD

Rhode Island

• Hospital Name: Rhode Island Hospital
• Address: 593 Eddy Street, Providence, RI 02903
• MD Name: Chanika Phornphutkul, MD

Tennessee

• Hospital Name: LeBonheur Children’s Hospital, Pediatric Clinical Research Unit, Diagnosis & Treatment Unit
• Address: 50 N. Dunlap, Slot 43, Memphis, TN 38103
• MD Name: Eniko Pivnick

• Hospital Name: Vanderbilt University Medical Ctr.
• Address: 1161 21st Ave. South, DD 2205 Med Ctr. North, Nashville, TN 37232-2578
• MD Name: Thomas Morgan, MD

Texas

• Hospital Name: Dell Children's Medical Center
• Address: 1301 Barbara Jordan Blvd, Suite 200, Austin, TX 78723
• MD Name: James Gibson, MD

• Hospital Name: Cook Children's Medical Center, Neurosciences Department
• Address: 901 Seventh Ave., Suite 120, Fort Worth, TX 76104
• MD Name: Warren Marks, MD

Utah

• Hospital Name: University of Utah, Division of Medical Genetics
• Address: 50 North Mario Capecchi Drive, 2C412 SOM, Salt Lake City, UT 84132
• MD Name: Dr. David Viskochil

Virginia

• Hospital Name: Children's Hospital of The King's Daughters (CHKD), Department of Medical Genetics
• Address: 601 Children's Lane, Norfolk, VA 23507
• MD Name: Virginia Proud, MD

Washington

• Hospital Name: Seattle Children's Hospital
• Address: 4800 Sand Point Way, B6594, Seattle, WA 98105
• MD Name: Dr. Paul Harmatz

Washington, DC

• Hospital Name: Children's National Medical Center, Research Center for Genetic Medicine
• Address: 111 Michigan Avenue, NW, Suite 1950, Washington, DC 20010-2970
• MD Name: Pranoot Tanpaiboon, MD

West Virginia

• Hospital Name: Robert C. Byrd Health Science Center
• Address: PO BOX 9214, Morgantown, WV 26505
• MD Name: Mary Beth Hummel, MD

Wisconsin

• Hospital Name: Children's Hospital of Wisconsin, Genetics Clinic
• Address: 9000 West Wisconsin Avenue, Milwaukee, WI 53226
• MD Name: David Dimmock, MD

This site is intended for United States residents only.
© 2012 Genzyme Corporation. All rights reserved. | POMP-US-P335-03-12