Focus on Patients

	John Evanosky, Genetic disease patient Genzyme continues to contribute to the development of newborn screening tests for genetic diseases, including metachromatic leukodystrophy, a progressive metabolic disorder that affects the neurological system. Our hope is to help families like John’s get treatment at the earliest possible point in the disease.
	Sandra Emerson, Clolar clinical trial patient Sandra was diagnosed in July of 2004 with adult acute myeloid leukemia and told there were no treatments available on the market for her illness. After participating in a phase 2 clinical trial with Clolar, she has been in remission since September, 2004.
	Andrew Elias, Renagel/Thymoglobulin patient Suffering from chronic kidney disease, Andrew was on dialysis for more than 17 years and a Renagel patient. After receiving a kidney transplant in 2005, Andrew is now a Thymoglobulin patient and is enjoying being with his son—whether going to sporting events or just being a dad.
	Soo Yee Tang, Synvisc patient Soo Yee Tang has no time for knee pain from osteoarthritis. An amateur dragon boat rower, breast cancer survivor and volunteer Kuala Lumpur, Soo Yee has had two courses of Synvisc, in 2001 and 2005, and is scheduled for Synvisc-One treatment in 2009 to maintain her active lifestyle.
	Serif Accan, Familial hypercholesterolemia patient Serif, a 29-year-old student, was diagnosed at age five with FH, a genetic disorder that causes high cholesterol. His only treatment option now is apheresis each week.
	Lecita Moore, Myozyme patient In her mid-twenties, Lecita Moore (shown with daughter Maiyah) was having difficulty sleeping, becoming increasingly clumsy and losing her balance, often unable to get up without assistance. Diagnosis: late-onset Pompe disease. Now a Myozyme patient, Lecita is determined to live a normal life with the support of her family.
	Avery Monday, Fabrazyme patient Avery is just like many nine-year-olds. He loves animals, video games and sports. A Fabry patient herself, Avery's mother found out he had the disease through testing while pregnant. Avery and his grandfather-who also has Fabry-share an avid interest in raising bearded dragon lizards.
	Aimee Alexander, Seprafilm patient Receiving Seprafilm in 2005 was a life-changing experience for Aimee. After enduring nearly 20 years of chronic abdominal pain, Aimee credits Seprafilm with making her pain-free and allowing her to live a more productive life.
	Joan Shey, Thyrogen patient After undergoing a 1995 thyroidectomy related to thyroid cancer, Joan dealt with the effects of hypothyroidism during annual treatments for metastasies in her lungs. In 1998, Thyrogen changed that, making a major difference in the way she feels. Joan founded the Light of Life Foundation in 1997 to educate patients and promote thyroid cancer awareness.
	Dennis Smith, Mozobil patient Dennis, 66, opted for a stem cell transplant to treat lymphoma after multiple rounds of chemotherapy. But four days of conventional stem cell collection failed to mobilize enough cells. After Mozobil mobilized enough cells in two days, he received a successful transplant in March, 2008.
	Anisa Elder, Aldurazyme patient Anisa was diagnosed with MPS I just after her first birthday and began once-weekly Aldurazyme treatments three months later. Today she is an energetic three-year-old who keeps her parents on their toes with her love of running and dancing—and running some more.
	Benny Livingston, Hectorol/Renagel patient Benny Livingston says he feels great in spite of undergoing hemodialysis three times a week. He has been receiving this treatment successfully since 2003. The Houston resident enjoys fishing trips to Galveston Island, seafood dinners, classic movies, and weekend visits from his five grandchildren. Learn more about Benny
	Gladys Slack, Campath patient Gardener and crossword puzzle enthusiast. Diagnosed with chronic lymphocytic leukemia in 2001, Gladys underwent three unsuccessful chemotherapy treatments. In 2003, she received MabCampath therapy and has had no recurrence or further treatment since then.
	Sarah Baron, Renagel patient Sarah's passion is her line of organic cotton clothes called "Pure Feeling" that she markets online. Diagnosed with polycystic kidney disease while pregnant in 1997, she has been on dialysis since 2004 and is on a wait list for a transplant. Her next goal? To open her own shop.