National Patient Organizations

In 2010, Genzyme collaborated with and supported the national patient organizations (PO) listed below. National organizations are defined as patient organizations that are registered in a European country and are active at a country specific level and/or only have members from that country. For the purpose of this listing, patient organizations are listed by country of scope, which may differ from their country of registration.

Global

European

National

• AUSTRIA

  PATIENT ORGANIZATION	DISEASE COMMUNITY	TYPE OF SUPPORT
  Austrian Myeloma- & Lymphoma Patienten Organisation (Myelom- & Lymphomhilfe Österreich)	Cancer	General financial support
  NASE - Nationale Aktionsplattform für seltene Erkrankungen	Rare diseases	General financial support
  ÖMF - Österreichische Muskelforschung	Neuromuscular diseases	General financial support
  Österreichische Gaucher Gesellschaft	Gaucher	General financial support
  Patientenorganisation für Mukopolysaccharidosen und ähnliche Erkrankungen	Mucopolysaccharidoses	General financial support
  Selbsthilfeorganisation Morbus Pompe Österreich	Pompe	General financial support

  
  

• BELGIUM

  PATIENT ORGANIZATION	DISEASE COMMUNITY	TYPE OF SUPPORT
  Association Belge contre les Maladies neuro-Musculaires (ABMM)	Neuromuscular diseases	General financial support
  Association pour l'information et la Recherche sur les maladies Rénales Génétiques (AIRG)	Kidney diseases	General financial support
  Belgische Oranisatie voor Kinderen en volwassenen met een stofwisselingsziekte (Boks)	Metabolic diseases	Financial support for meeting(s) organized by PO
  Belgische Oranisatie voor Kinderen en volwassenen met een stofwisselingsziekte (Boks)	Metabolic diseases	Financial support for PO's attendance to meeting(s)
  Fenier-Fabir	Fabry	Financial support for meeting(s) organized by PO
  MS Liga Vlaanderen	Multiple Sclerosis	General financial support
  Vaincre les maladies lysosomales	Lysosomal Storage Disorders	General financial support
  Vlaamse Verenigng Neuromusculaire aandoeningen (Nema)	Neuromuscular diseases	General financial support

  
  

• BULGARIA

  PATIENT ORGANIZATION	DISEASE COMMUNITY	TYPE OF SUPPORT
  Асоциация на Пациентите с Онкологични Заболявания и приятели	Cancer	Direct Financial Support
  Българска Асоциация за Невромускулни заболявания	Neuromuscular	General financial support
  Българска Асоциация за Невромускулни заболявания	Neuromuscular	Financial support for PO's attendance to meeting(s)
  Национален Алианс на Хората с Редки Болести	All Patients	Financial support for meeting(s) organized by PO
  Национален Алианс на Хората с Редки Болести	All Patients	Financial support for patient / public education and awareness on disease(s)
  Национален Алианс на Хората с Редки Болести	All Patients	Financial support for PO's attendance to meeting(s)
  Национален Алианс на Хората с Редки Болести	All Patients	Financial support for PO's attendance to meeting(s)
  Национален Алианс на Хората с Редки Болести	All Patients	Financial support for PO's attendance to meeting(s)
  Национален Алианс на Хората с Редки Болести	All Patients	Financial support for meeting(s) organized by PO
  Национален Алианс на Хората с Редки Болести	All Patients	Financial support for PO's attendance to meeting(s)
  Национална Асоциация на Болните от Гоше	Gaucher	General financial support
  Национална Асоциация на Болните от Гоше	Gaucher	Financial support for meeting(s) organized by PO
  Съюз на трансплантираните в България	Transplant	Financial support for meeting(s) organized by PO

  
  

• CROATIA

  PATIENT ORGANIZATION	DISEASE COMMUNITY	TYPE OF SUPPORT
  Hrvatska udruga bolesnika sa rijetkim bolestima	Rare diseases	Financial support for PO's attendance to meeting(s)
  Hrvatska udruga bolesnika sa rijetkim bolestima	Rare diseases	Financial support for meeting(s) organized by PO
  Hrvatska udruga bolesnika sa rijetkim bolestima	Rare diseases	Financial support of Public Relations activities of PO
  Hrvatska udruga bolesnika sa rijetkim bolestima	Rare diseases	General financial support
  Hrvatska udruga za cisticnu fibrozu	Cystic Fibrosis	Financial support for meeting(s) organized by PO
  Hrvatska udruga za cisticnu fibrozu	Cystic Fibrosis	Financial support for meeting(s) organized by PO
  Udruga oboljelih i liječenih od malignih bolesti ‘’Za novi dan’’	Cancer	Financial support for PO's attendance to meeting(s)
  Udruga oboljelih i liječenih od malignih bolesti ‘’Za novi dan’’	Cancer	General financial support
  Zajednica udruga dijaliziranih i transplantiranih bubrežnih bolesnika Hrvatske	Kidney diseases	General financial support
  Zajednica udruga dijaliziranih i transplantiranih bubrežnih bolesnika Hrvatske	Kidney diseases	Financial support for meeting(s) organized by PO

  
  

• CZECH REPUBLIC

  PATIENT ORGANIZATION	DISEASE COMMUNITY	TYPE OF SUPPORT
  META	Lysosomal Storage Disorders	Financial support for PO's attendance to meeting(s)
  Společnost pro mukopolysacharidosu	Mucopolysaccharidosis	General financial support
  Společnosti pro pomoc při Huntingtonově chorobě	Huntingtons Disease	Financial support for PO's attendance to meeting(s)

  
  

• DENMARK

  PATIENT ORGANIZATION	DISEASE COMMUNITY	TYPE OF SUPPORT
  Fabry Patientforeningen Danmark	Fabry	Financial support for meeting(s) organized by PO
  Gaucher Foreningen I Danmark	Gaucher	General financial support
  Gaucher Foreningen I Danmark	Gaucher	Financial support for PO's attendance to meeting(s)

  
  

• FINLAND

  PATIENT ORGANIZATION	DISEASE COMMUNITY	TYPE OF SUPPORT
  Gaucher Potilaiden Yhteydenotot	Gaucher	Financial support for PO's attendance to meeting(s)
  Suomen Fabry-yhdistys	Fabry	General financial support

  
  

• FRANCE

  PATIENT ORGANIZATION	DISEASE COMMUNITY	TYPE OF SUPPORT
  Association de Patients de la Maladie de Fabry (APMF)	Fabry	Financial support for meeting(s) organized by PO
  Association de Patients de la Maladie de Fabry (APMF)	Fabry	Financial support for patient / public education and awareness on disease(s)
  Association pour l'Information et la Recherche sur les maladies Rénales Génétiques (AIRG)	Genetic diseases	Financial support for meeting(s) organized by PO
  Association pour l'Information et la Recherche sur les maladies Rénales Génétiques (AIRG)	Genetic diseases	Financial support for patient / public education and awareness on disease(s)
  Fédération Nationale d'Aide aux Insuffisants Rénaux (FNAIR)	Kidney diseases	Financial support for patient / public education and awareness on disease(s)
  Ligue Rein et Santé (LRS)	Kidney diseases	Financial support for patient / public education and awareness on disease(s)
  Ligue Rein et Santé (LRS)	Kidney diseases	Financial support for patient / public education and awareness on disease(s)
  Vaincre les Maladies Lysosomales (VML)	Lysosomal Storage Disorders	Financial support for patient / public education and awareness on disease(s)
  Vaincre les Maladies Lysosomales (VML) Marocco	Lysosomal Storage Disorders	Financial support for meeting(s) organized by PO

  
  

• GERMANY

  PATIENT ORGANIZATION	DISEASE COMMUNITY	TYPE OF SUPPORT
  Allianz Chronischer Seltener Erkrankungen e.V. (ACHSE)	Rare diseases	Financial support for meeting(s) organized by PO
  Bundesverband Niere e.V.	Kidney diseases	Financial support for meeting(s) organized by PO
  Deutsche Gesellschaft zur Bekämpfung von Fettstoffwechselstörungen und ihren Folgeerkrankungen DGFF (Lipid-Liga) e.V.	Familial Hypercholesterolemia	Financial support for patient / public education and awareness on disease(s)
  Deutsche Gesellschaft zur Bekämpfung von Fettstoffwechselstörungen und ihren Folgeerkrankungen DGFF (Lipid-Liga) e.V.	Familial Hypercholesterolemia	Financial support of Public Relations activities of PO
  Deutsche Kinderkrebsstiftung, Bonn	Cancer	Financial support of patient care related project(s)
  Dialysepatienten und Transplantierte Chemnitz	Kidney diseases	Financial support of patient care related project
  Dialyseverband Sachsen e.V.	Kidney diseases	Financial support of patient care related project
  Fürs Leben	Organ transplant	Financial support of public relations activities by PO
  Gaucher Gesellschaft Deutschland e.V.	Gaucher	Financial support for PO's attendance to meeting(s)
  Gaucher Gesellschaft Deutschland e.V.	Gaucher	General financial support
  Gaucher Gesellschaft Deutschland e.V.	Gaucher	Financial support for meeting(s) organized by PO
  Interessengemeinschaft der Dialysepatienten und Nierentransplantierten in Bayern e.V.	Kidney diseases	Financial support for meeting(s) organized by PO, financial support of patient care related project
  Interessengemeinschaft Niere NRW e.V.	Kidney diseases	Financial support of patient care related project and support of public relations activities by PO
  Interessengemeinschaft Niere NRW e.V.	Kidney diseases	Financial support of public relations activities by PO
  Interessengemeinschaft Nieren Region Kiel e.V.	Kidney diseases	Financial support of patient care related project
  Junge Nierenkranke Deutschland e.V.	Kidney diseases	Financial support of patient care related project
  Kindernetzwerk e.V.	All Patients	Financial support for publication
  Landesverband Nierenkranker, Dialysepatienten und Transplantierter Niedersachsen e.V.	Kidney diseases	Financial support of patient care related project(s)
  Morbus Fabry Selbsthilfegruppe e.V.	Fabry	Financial support for meeting(s) organized by PO
  MPS-Gesellschaft e.V.	Mucopolysaccharidoses	Financial support for meeting(s) organized by PO, financial support of patient care related project
  Niemann-Pick Selbsthilfegruppe e.V.	Niemann-Pick	Financial support for meeting(s) organized by PO
  PKD Familiäre Zystennieren e.V.	Kidney diseases	Financial support for meeting(s) organized by PO
  SHG Glykogenose Deutschland e.V.	Glycogen Storage Disorders	Financial support of patient care related project(s)
  SHG Glykogenose Deutschland e.V.	Glycogen Storage Disorders	Financial support for meeting(s) organized by PO
  SHG Niere Rhein-Ahr-Eifel e.V., Kreis Euskirchen	Kidney diseases	Financial support of patient care related project
  Stiftung Präventive Pädiatrie e.V.	All Patients	Financial support of patient care related project
  TransDia	Organ transplant	Financial support of public relations activities by PO
  VOD e.V.	Arthritic	Financial support of public relations activities by PO

  
  

• GREECE

  PATIENT ORGANIZATION	DISEASE COMMUNITY	TYPE OF SUPPORT
  Η Ανοιχτή Αγκαλιά των «Φίλων Κοινωνικής Παιδιατρικής»	All Patients	Financial support of patient care related project(s)
  Πανελλήνια Ένωση Σπανίων Παθήσεων (ΠΕΣΠΑ) Pan Hellenic Alliance of Rare Diseases (PESPA)	Lysosomal Storage Disorders	Financial support of Public Relations activities of PO
  Πανελλήνια Ένωση Σπανίων Παθήσεων (ΠΕΣΠΑ) Pan Hellenic Alliance of Rare Diseases (PESPA)	Rare diseases	Financial support for PO's attendance to meeting(s)
  Πανελλήνια Ένωση Σπανίων Παθήσεων (ΠΕΣΠΑ) Pan Hellenic Alliance of Rare Diseases (PESPA)	Rare diseases	Financial support for meeting(s) organized by PO
  Πανελλήνια Ένωση Σπανίων Παθήσεων (ΠΕΣΠΑ) Pan Hellenic Alliance of Rare Diseases (PESPA)	Rare diseases	Financial support for PO's attendance to meeting(s)
  Πανελλήνιος Σύλλογος Ασθενών Και Φίλων Πασχόντων Από Νόσο GAUCHER Και Άλλες Λυσοσωμικές Διαταραχές "Η Αλληλεγγύη"	Lysosomal Storage Disorders	General financial support
  Πανελλήνιος Σύλλογος Ασθενών Και Φίλων Πασχόντων Από Νόσο GAUCHER Και Άλλες Λυσοσωμικές Διαταραχές "Η Αλληλεγγύη"	Lysosomal Storage Disorders	General financial support
  Πανελλήνιος Σύλλογος Ασθενών Και Φίλων Πασχόντων Από Νόσο GAUCHER Και Άλλες Λυσοσωμικές Διαταραχές "Η Αλληλεγγύη"	Lysosomal Storage Disorders	Financial support for PO's attendance to meeting(s)
  Πανελλήνιος Σύλλογος Ασθενών Και Φίλων Πασχόντων Από Νόσο GAUCHER Και Άλλες Λυσοσωμικές Διαταραχές "Η Αλληλεγγύη"The Greek Gaucher & other lysosomal storage disorders patient association "The Solidarity"	Lysosomal Storage Disorders	General financial support
  Πανελλήνιος Σύνδεσμος Νεφροπαθών Pan Hellenic Renal Association	Kidney diseases	Indirect financial support

  
  

• HUNGARY

  PATIENT ORGANIZATION	DISEASE COMMUNITY	TYPE OF SUPPORT
  Alapitvány a Pompe betegekért	Pompe	General financial support
  Alapítvány a Pompe betegekért	Pompe	General financial support
  Alapítvány az ALS betegekért	Neuromuscular	General financial support
  Magyar Transzplantációs Társaság Alapítványa	Organ transplant	General financial support
  Mukopoliszacharidózis Társaság	Mucopolysaccharidoses	Financial support for meeting(s) organized by PO
  Szervtranszplantáltak Országos Szövetsége	Organ transplant	General financial support

  
  

• ISRAEL

  PATIENT ORGANIZATION	DISEASE COMMUNITY	TYPE OF SUPPORT
  The Israel Cancer Association (ICA)	Cancer	Financial support for meeting(s) organized by PO
  The Israeli Gaucher association	Gaucher	Financial support for meeting(s) organized by PO
  The Myeloma association	Cancer	Financial support for meeting(s) organized by PO
  The patients rights association	All Patients	Financial support for meeting(s) organized by PO

  
  

• ITALY

  PATIENT ORGANIZATION	DISEASE COMMUNITY	TYPE OF SUPPORT
  AIBAT Associazione Italiana Basedowiani e Tiroidei (AIBAT)	Thyroïd diseases	General financial support
  AIG Associazione Italiana Gaucher - Onlus	Gaucher	General financial support
  AIL Associazione Italiana Leucemie	Cancer	General financial support
  AIL Associazione Italiana Leucemie	Cancer	General financial support
  AIL Associazione Italiana Leucemie	Cancer	General financial support
  AIMPS Associazione Italiana Mucopolisaccaridosi e Malattie affini	Mucopolysaccharidoses	General financial support
  AIPAF Associazione Italiana Pazienti Anderson-Fabry	Fabry	General financial support
  AMT Associazione Malati Tiroidei	Cancer	General financial support
  ATTA Onlus (Palermo)	Thyroïd diseases	Financial support of Public Relations activities of PO
  Federazione Lombarda Malattie Rare	Rare Diseases	General financial support
  FIR Fondazione Italiana del Rene Onlus	Kidney diseases	Financial support for healthcare professional education and awareness on disease(s)
  GIPF Gruppo Italiano Pazienti Fabry	Fabry	General financial support
  La Lumaca Onlus - Thyroid Association	Thyroïd diseases	General financial support
  Parent Project Onlus	Duchenne Muscular Dystrophy	Financial support for meeting(s) organized by PO
  UNIAMO	All Patients	Indirect financial support
  UNIAMO	Rare Diseases	General financial support

  
  

• LATVIA

  PATIENT ORGANIZATION	DISEASE COMMUNITY	TYPE OF SUPPORT
  Reto slimibu biedriba Caladrius	Rare diseases	Financial support for patient / public education and awareness on disease(s)

  
  

• THE NETHERLANDS

  PATIENT ORGANIZATION	DISEASE COMMUNITY	TYPE OF SUPPORT
  Gaucher Vereniging Nederland	Gaucher	Financial support of patient care related project
  Nierpatiëntenvereniging Maastricht	Kidney diseases	Financial support of patient care related project
  Nierpatiëntenvereniging West Brabant	Kidney diseases	Financial support of patient care related project
  Stichting Zebrazorg	All Patients	Financial support of patient care related project
  Vereniging Samenwerkende Ouder- en Patiëntenorganisaties	Genetic diseases	Financial support of patient care related project
  Vereniging Spierziekten Nederland	Neuromuscular diseases	General financial support
  Vereniging Spierziekten Nederland	Pompe	Financial support of patient care related project
  Vereniging Spierziekten Nederland	Neuromuscular diseases	Financial support for PO's attendance to meeting(s)
  Vereniging voor Volwassenen en Kinderen met Stofwisselingsziekten	Metabolic diseases	General financial support
  Vereniging voor Volwassenen en Kinderen met Stofwisselingsziekten	Metabolic diseases	Financial support for PO's attendance to meeting(s)

  
  

• NORWAY

  PATIENT ORGANIZATION	DISEASE COMMUNITY	TYPE OF SUPPORT
  Fabry Patientforening i Norge	Fabry	Financial support for meeting(s) organized by PO
  Foreldregruppen for MPS sykdommer	Mucopolysaccharidoses	General financial support
  Foreningen for Muskelsyke	Pompe	General financial support
  Gaucher foreningen i Danmark	Gaucher	Financial support for meeting(s) organized by PO

  
  

• PORTUGAL

  PATIENT ORGANIZATION	DISEASE COMMUNITY	TYPE OF SUPPORT
  APIR - Associação Portuguesa de Insuficientes Renais	Kidney diseases	Financial support for patient / public education and awareness on disease(s)
  APL - Associação Portuguesa das Doenças do Lisossoma	Lysosomal Storage Disorders	Non-financial support
  APL - Associação Portuguesa das Doenças do Lisossoma	Lysosomal Storage Disorders	Financial support for meeting(s) organized by PO
  FEDRA	Rare Diseases	Financial support for patient / public education and awareness on disease(s)
  Raríssimas - Associação Portuguesa de Doenças Raras e Mentais	Rare Diseases	Financial support for patient / public education and awareness on disease(s)
  Raríssimas - Associação Portuguesa de Doenças Raras e Mentais	Rare Diseases	Financial support of patient care related project(s)

  
  

• ROMANIA

  PATIENT ORGANIZATION	DISEASE COMMUNITY	TYPE OF SUPPORT
  Alianta Nationala pentriu boli rare	Rare diseases	Financial support for meeting(s) organized by PO
  Alianta Nationala pentriu boli rare	Rare diseases	Financial support for PO's attendance to meeting(s)
  Fundatia Romana pentru bolile lizozomale	Rare diseases	Financial support for meeting(s) organized by PO

  
  

• RUSSIA

  PATIENT ORGANIZATION	DISEASE COMMUNITY	TYPE OF SUPPORT
  Oрганизацией «Содействие инвалидам с	Rare diseases	Financial support for meeting(s) organized by PO
  Oрганизацией «Содействие инвалидам с	Rare diseases	Financial support for meeting(s) organized by PO
  Межрегиональной общественной организацией «Содействие инвалидам с детства, страдающим болезнью Гоше, и их семьям	Gaucher	General financial support
  Межрегиональной общественной организацией «Содействие инвалидам с детства, страдающим болезнью Гоше, и их семьям	Gaucher	Financial support for patient / public education and awareness on disease(s)
  Межрегиональной общественной организацией «Содействие инвалидам с детства, страдающим болезнью Гоше, и их семьям	Gaucher	General financial support
  Межрегиональной общественной организацией «Содействие инвалидам с детства, страдающим болезнью Гоше, и их семьям	Gaucher	Financial support for patient / public education and awareness on disease(s)
  Межрегиональной общественной организацией «Содействие инвалидам с детства, страдающим болезнью Гоше, и их семьям	Gaucher	Indirect financial support
  Межрегиональной общественной организацией «Содействие инвалидам с детства, страдающим болезнью Гоше, и их семьям	Gaucher	Indirect financial support
  Межрегиональной общественной организацией «Содействие инвалидам с детства, страдающим болезнью Гоше, и их семьям	Gaucher	Financial support for patient / public education and awareness on disease(s)
  Межрегиональные общественные организации “Содействия инвалидам, страдающим лизосомными болезнями накопления и их семьям” и «Хантер-синдром»	Mucopolysaccharidoses	General financial support
  Межрегиональные общественные организации “Содействия инвалидам, страдающим лизосомными болезнями накопления и их семьям” и «Хантер-синдром»	Mucopolysaccharidoses	Indirect financial support
  Межрегиональные общественные организации “Содействия инвалидам, страдающим лизосомными болезнями накопления и их семьям” и «Хантер-синдром»	Mucopolysaccharidoses	General financial support
  Межрегиональные общественные организации “Содействия инвалидам, страдающим лизосомными болезнями накопления и их семьям” и «Хантер-синдром»	Mucopolysaccharidoses	Indirect financial support

  
  

• SERBIA

  PATIENT ORGANIZATION	DISEASE COMMUNITY	TYPE OF SUPPORT
  Udruzenje bubreznih bolesnika i invalida na kucnoj dijalizi Republike Srbije - "Renalis"	Kidney diseases	General financial support
  Zivot-Udruzenje gradjana za borbu protiv retkih bolesti kod dece	Rare diseases	Financial support of Public Relations activities of PO

  
  

• SLOVENIA

  PATIENT ORGANIZATION	DISEASE COMMUNITY	TYPE OF SUPPORT
  Drustvo bolnikov z Fabryjevo boleznijo Slovenije	Fabry	Financial support for PO's attendance to meeting(s)
  Drustvo bolnikov z Gaucherjevo boleznijo Slovenije	Gaucher	Financial support for meeting(s) organized by PO
  Drustvo bolnikov z Gaucherjevo boleznijo Slovenije	Gaucher	Financial support for PO's attendance to meeting(s)
  Drustvo distrofikov Slovenije	Neuromuscular diseases	Financial support for meeting(s) organized by PO
  Drustvo distrofikov Slovenije	Neuromuscular diseases	Financial support for PO's attendance to meeting(s)
  Drustvo distrofikov Slovenije	Neuromuscular diseases	Financial support of patient care related project(s)
  Društvo ledvičnih bolnikov Ljubljana	Kidney diseases	Financial support for meeting(s) organized by PO
  Društvo za pomoč pri oboljenjih od ščitnice "Metuljčica"	Thyroïd diseases	Financial support for meeting(s) organized by PO
  VIVA, Drustvo ledvicnih bolnikov Vojnik	Kidney diseases	Financial support for meeting(s) organized by PO
  Zveza društev ledvičnih bolnikov Slovenije	Kidney diseases	General financial support

  
  

• SPAIN

  PATIENT ORGANIZATION	DISEASE COMMUNITY	TYPE OF SUPPORT
  Asociación Española de Enfermos de Glucogenosis (AEEG)	Glycogen Storage Disorders	Financial support for meeting(s) organized by PO
  Asociación Española de Enfermos de Glucogenosis (AEEG)	Glycogen Storage Disorders	Financial support of Public Relations activities of PO
  Asociación Española de Enfermos y Familiares de la Enfermedad de Gaucher (AEEFEG)	Gaucher	Financial support for patient / public education and awareness on disease(s)
  Asociación Española de Enfermos y Familiares de la Enfermedad de Gaucher (AEEFEG)	Gaucher	Financial support for meeting(s) organized by PO
  Asociación Española de Enfermos y Familiares de la Enfermedad de Gaucher (AEEFEG)	Gaucher	Financial support for meeting(s) organized by PO
  Asociación Española de las Mucopolisacaridosis y Síndromes Relacionados (MPS España)	Mucopolysaccharidoses	Financial support for meeting(s) organized by PO
  Asociación Española de las Mucopolisacaridosis y Síndromes Relacionados (MPS España)	Mucopolysaccharidoses	Financial support for patient / public education and awareness on disease(s)
  Asociación Iberoamericana contra el cáncer de tiroides (AICCAT)	Cancer	Financial support for patient / public education and awareness on disease(s)
  Asociación Iberoamericana contra el cáncer de tiroides (AICCAT)	Cancer	Financial support for meeting(s) organized by PO
  Federación Española de Enfermedades Neuromusculares (ASEM)	Neuromuscular diseases	Financial support for meeting(s) organized by PO
  Federación FEDER	Rare diseases	Financial support for patient / public education and awareness on disease(s)
  Federación Nacional ALCER	Kidney diseases	General financial support
  Fundación FEDER	Rare diseases	Financial support for disease research

  
  

• SWEDEN

  PATIENT ORGANIZATION	DISEASE COMMUNITY	TYPE OF SUPPORT
  Föreningen for Fabrysjuka	Fabry	Financial support for meeting(s) organized by PO
  Morbus Gaucher Association	Gaucher	Financial support for meeting(s) organized by PO
  Patientföreningen FH Sverige	Familial Hypercholesterolemia	Non-financial support
  Patientföreningen FH Sverige	Familial Hypercholesterolemia	General financial support
  Svenska MPS Föreningen	Mucopolysaccharidoses	Financial support for meeting(s) organized by PO
  Svenska Sköldkörtelföreningen	Metabolic diseases	Financial support for meeting(s) organized by PO
  Västsvenska Patientföreningen för skjöldkörtelsjuka	Metabolic diseases	Financial support for meeting(s) organized by PO

  
  

• SWITZERLAND

  PATIENT ORGANIZATION	DISEASE COMMUNITY	TYPE OF SUPPORT
  AIRG Suisse	Fabry	General financial support
  Fabrysuisse	Fabry	General financial support
  Gesellschaft für Muskelkranke	Neuromuscular diseases	General financial support
  ho/noho Schweizerische Patientenorganisation für Lymphombetroffene und Angehörige	Cancer	General financial support
  Lysosuisse	Lysosomal Storage Disorders	General financial support
  VML Suisse	Lysosomal Storage Disorders	General financial support

  
  

• UKRAINE

  PATIENT ORGANIZATION	DISEASE COMMUNITY	TYPE OF SUPPORT
  Всеукраїнська громадська організація "Асоціація допомоги інвалідам та пацієнтам з хронічними лімфопроліферативними захворюваннями"	Cancer	Financial support for healthcare professional education and awareness on disease(s)
  Всеукраїнська громадська організація "Об'єднання інвалідів-хворих на хворобу Гоше"	Gaucher	Financial support for PO's attendance to meeting(s)
  Всеукраїнська спілка громадських організацій "Рух за здоров'я"	Rare diseases	General financial support

  
  

• UNITED KINGDOM

  PATIENT ORGANIZATION	DISEASE COMMUNITY	TYPE OF SUPPORT
  Action Duchenne	Duchenne Muscular Dystrophy	Financial support of patient care related project(s)
  Gaucher Association	Gaucher	Financial support of Public Relations activities of PO
  HEART UK	Familial Hypercholesterolemia	Financial support for meeting(s) organized by PO
  HEART UK	Familial Hypercholesterolemia	Financial support for meeting(s) organized by PO
  Leukaemia Care	Cancer	Financial support for patient / public education and awareness on disease(s)
  Muscular Dystrophy Campaign	Neuromuscular diseases	Financial support for meeting(s) organized by PO
  Myeloma UK	Cancer	Financial support of patient care related project(s)
  Myeloma UK	Cancer	Financial support for healthcare professional education and awareness on disease(s)
  National Kidney Foundation	Kidney diseases	Financial support for meeting(s) organized by PO
  Niemann Pick Disease Group (UK)	Niemann-Pick	Financial support for patient / public education and awareness on disease(s)
  Niemann Pick Disease Group (UK)	Niemann-Pick	Financial support for meeting(s) organized by PO
  Niemann-Pick Disease Group (UK)	Niemann-Pick	Financial support for PO's attendance to meeting(s)
  TCF-UK	Thyroïd diseases	Financial support for meeting(s) organized by PO
  The Association of Glycogen Storage Diseases (AGSD)	Glycogen Storage Disorders	Financial support for meeting(s) organized by PO
  The Association of Glycogen Storage Diseases (AGSD)	Glycogen Storage Disorders	General financial support
  The MPS Society	Mucopolysaccharidoses	Financial support for PO's attendance to meeting(s)
  The MPS Society	Mucopolysaccharidoses	Financial support of patient care related project(s)
  The MPS Society	Mucopolysaccharidoses	Financial support for meeting(s) organized by PO
  The MPS Society	Mucopolysaccharidoses	Financial support for healthcare professional education and awareness on disease(s)
  The MPS Society	Mucopolysaccharidoses	Financial support for PO's attendance to meeting(s)

  
  

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