Patients who are knowledgeable about their conditions, their treatment options, and the health care industry are better prepared not only to help manage their own health, but to participate in important dialogues with health care professionals, policy makers, and the general public. But because Genzyme focuses on rare diseases, unmet medical needs, and innovative treatment approaches, it's not always easy for the patients we serve to find the information they need. In some cases, these diseases are so rare that there are little or no reliable resources available.
To fill those gaps, Genzyme produces educational materials on a variety of topics, both in print and online. The pages below address topics relevant across many patient groups. Our individual disease and product websites provide additional details, plus helpful tools such as physician and treatment center locators.
In addition, we have an on-staff Medical Information group available to answer specific medical questions about our products and the conditions we treat. Medical Information can be reached at 800-745-4447, option 2.
Email Genzyme Medical Information
Learn about our current therapies and find links to each product's U.S. website for more treatment details, disease information, and helpful resources.
Visit the product information page
Education is an important responsibility of Genzyme's Patient Advocacy group. Working closely with patient organizations worldwide, our advocacy teams participate in activities that help inform and connect patients and raise wider awareness about their needs.
2010 World Rare Disease Day
Sue Kahn, Executive Director of the National Tay-Sachs & Allied Diseases Association, speaks at Genzyme's event for World Rare Disease Day, a global initiative established to call attention to many diseases that are often under-recognized.
Visit the World Rare Disease Day website
Learn more about the conditions that Genzyme's products treat, and explore online resources that can help patients make more empowered decisions about their treatment and their health.
The Research Process
Developing a new medical treatment is a long and complex process – averaging 12 years from start to finish, if successful, and requiring innovative thinking as well as persistence and patience. Here's an overview of how companies like Genzyme bring our therapies to patients.
The Cost of Enzyme Replacement Therapy
As a pioneer in the development of treatments for rare disorders, Genzyme recognizes our responsibility to maintain transparency and an open dialogue around the factors affecting the cost of therapy.